This week: Before I get into this week’s dispatches, I want you to pause and answer a simple question.

Not a theoretical one. Not the answer you think you should give. The one that reflects how things actually work where you are.

Last week, I asked a related question. What is the biggest challenge you face in patient engagement today?

The responses were unanimous.

People said it starts too late to influence decisions.

That answer has stayed with me, not because it was unexpected, but because of how quietly certain it was. No debate. No dissent. Just shared recognition of a pattern that many of us have normalised, even while knowing it does not work.

Closing chapter one of 2026

I have been thinking about 2026 as a twelve-chapter year.

Not in the sense of milestones or announcements, but in the sense of deliberate progression. Each chapter doing a specific job. Each one earning the right to move to the next.

January was chapter one, and its job was simple but hard: move Unwritten Health from intention to evidence.

That meant engaging investors early, not to sell certainty, but to pressure-test the problem and the model. To hear where scepticism surfaced. To understand what decision-makers would actually need in order to act differently.

It meant building and testing the MVP in the open, with real users, real responses, and real friction. Not a polished demonstration, but something that could break under scrutiny.

And it meant moving beyond talking about underserved populations to actually building a community. As of today, close to 2,000 people are actively engaging in surveys and sharing lived experience through the platform. This is not a one-off data grab. It is the beginning of longitudinal insight, where context accumulates, patterns form, and experience becomes interpretable over time.

By the end of February, that community will reach 5,000 people. Not because bigger is better, but because scale is what turns lived experience into signal rather than anecdote.

This is the difference between listening and learning.

Why timing, not intent, is the real issue

This is why last week’s poll mattered so much to me.

When people say engagement starts too late, they are not criticising empathy or values. They are pointing to a structural issue.

If lived experience arrives late, it becomes commentary.

If it arrives early, it becomes risk detection.

Early insight can surface participation barriers before recruitment collapses. It can challenge assumptions before they harden into policy. It can prevent well-intentioned failure rather than just documenting it.

That is the shift Unwritten Health exists to make.

Not louder voices.

Not better storytelling.

But decision-grade lived experience early enough to matter.

January showed me that this is not abstract. It is operational. It is buildable. And it is already happening when lived experience is treated as infrastructure rather than optics.

IHI-READI General Assembly: What it taught m

I want to pause here, because this matters to me more than I expected it to.

I have watched the READI consortium from a distance since it launched. Over the past year, I have followed its ambition, its scale, and its intent with a mixture of admiration and, if I am honest, quiet jealousy. It was clear that something serious was being built, something that aimed to tackle long-standing structural issues in European clinical research rather than just naming them.

So to be invited to join the Scientific Advisory Board was not something I took lightly. I was genuinely honoured to be involved, and particularly to be sat alongside two people whose work I deeply respect. Elena Petelos, a Public Health Specialist and HTA expert with an exceptional track record in evidence-informed policy and equity. And Laura Pioppo, ACT EU Programme Manager at the European Medicines Agency, whose grasp of regulatory systems, coordination, and delivery is as sharp as it is grounded.

Over two intense days, I sat through updates from all ten work packages. Not summaries. Not headlines. Proper, detailed progress reports on what has been built, tested, challenged, and refined.

I was blown away.

By the depth of thought being applied. By the seriousness with which equity, trust, and participation are being treated. By the passion and integrity of the people doing the work, many of whom are navigating genuinely complex political, regulatory, and operational terrain.

This was not performative collaboration. It was hard, often unglamorous system-building.

What struck me most, though, was not just how much progress has been made, but how much responsibility sits with those of us in the room. When you see that level of effort up close, it becomes impossible to stay comfortable with surface-level solutions or late-stage engagement.

What I also took away from those two days was a deeper appreciation for just how complex this work really is. Seeing all ten work packages together made it clear that progress does not come from one intervention or one perspective, but from many moving parts advancing in parallel, often at different speeds. I learned how easily good intentions can become diluted when responsibility is distributed across systems, how trust is influenced as much by design choices as by communication, and how often lived experience is implicitly assumed rather than explicitly integrated. None of this diminished my optimism. If anything, it strengthened it. It reinforced for me that the challenge is not a lack of commitment or intelligence, but the need for better connective tissue between policy, technology, regulation, and the realities of people’s lives. That insight has stayed with me, and it continues to shape how I think about where Unwritten Health can add real, practical value alongside this wider European effort.

Being part of the Scientific Advisory Board is not a badge for me. It is a commitment. A commitment to bring lived experience thinking into places where decisions are still being shaped, not just explained. And a reminder that if we want systems to change, we have to be willing to sit inside their complexity, not shout from the edges.

That experience sharpened my resolve, not just to contribute thoughtfully within READI, but to ensure that what I am building with Unwritten Health genuinely complements and strengthens this wider European effort.

Because the ambition is there. The progress is real. And the opportunity, if we get this right, is enormous.

So whats chapter two looking like?

February is not a reflective month. It is an execution month.

I will be pitching at national and European health tech events. Unwritten Health has been shortlisted for multiple startup awards. Conversations that began as curiosity now need to turn into pilots, partnerships, and funding.

This is the month where ideas either remain interesting or become real.

And this is where I want to keep you involved.

So I will leave you with the question that sits underneath everything I am building:

What would have changed if lived experience had shaped the decision, not just the delivery?

That is the question I will keep returning to in the weeks ahead.

Because the future of health equity will not be decided by how often we say the right things, but by when we choose to listen.

Chapter two is already underway.

Regards,

Ashish.

Reply

Avatar

or to participate

Keep Reading